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It’s a known fact that the general population is getting older and most people – including those with Spina Bifida and/or Hydrocephalus will enjoy a longer lifespan than previous generations.
As intensive treatment and studies of Spina Bifida and Hydrocephalus did not really begin until the early 1960’s, it is only recently that relatively large numbers of people with these conditions have been assessed.
When young people leave education and leave paediatric services, they often find that much of the responsibility for monitoring their general health lies with themselves.