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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Join Up-coming Events & Webinars

We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here

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Photos from Celbridge Access Group's post ... See MoreSee Less

2 hours ago
We had such fun today hosting our Sports Day! πŸ™ŒπŸ»Image attachmentImage attachment+6Image attachment

We had such fun today hosting our Sports Day! πŸ™ŒπŸ» ... See MoreSee Less

3 days ago

4 CommentsComment on Facebook

Well done to all. Great event for most.

Was there and had a great day. Thank You

Such a great day

JOIN TEAM SBHI! 

Sign up today for the VHI Womens Mini Marathon Vhi Womens Mini Marathon  and get a FREE TEAM SBHI T-shirt to wear on the day! πŸ‘•

How to sign up?
> Go to https://www.vhiwomensminimarathon.ie/
>Select whether you wish to run in Dublin, or virtually.
>Fill in your details
>Select the option to create a fundraising page and choose Spina Bifida Hydrocephalus Ireland from the dropdown
>Proceed to checkout

Once registered, please contact Noelle at njordan@sbhi.ie to arrange postage/collection of your free T-Shirt.

We hope to see you there! 😁

#vhiwmm #teamsbhi

JOIN TEAM SBHI!

Sign up today for the VHI Women's Mini Marathon Vhi Women's Mini Marathon and get a FREE TEAM SBHI T-shirt to wear on the day! πŸ‘•

How to sign up?
> Go to www.vhiwomensminimarathon.ie/
>Select whether you wish to run in Dublin, or virtually.
>Fill in your details
>Select the option to create a fundraising page and choose Spina Bifida Hydrocephalus Ireland from the dropdown
>Proceed to checkout

Once registered, please contact Noelle at njordan@sbhi.ie to arrange postage/collection of your free T-Shirt.

We hope to see you there! 😁

#vhiwmm #teamsbhi
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5 days ago
We are heartbroken to share with you all of the passing of our Dear Friend Frankie.

Frankie was a lifelong best friend of Hellen Martin & Tiny and a beloved Member of the Open Opportunity Service.

Frankie was everyone’s friend, always smiling and helpful and had a heart of pure gold. Frankie had achieved so much during his time in the Day Service and was so so proud of these achievements. He was looking forward to all that was to come and was extremely happy. We take solace in this and in the beautiful memories that will stay with us forever. You will be missed everyday our Forever Friend❀️

We are heartbroken to share with you all of the passing of our Dear Friend Frankie.

Frankie was a lifelong best friend of Hellen Martin & Tiny and a beloved Member of the Open Opportunity Service.

Frankie was everyone’s friend, always smiling and helpful and had a heart of pure gold. Frankie had achieved so much during his time in the Day Service and was so so proud of these achievements. He was looking forward to all that was to come and was extremely happy. We take solace in this and in the beautiful memories that will stay with us forever. You will be missed everyday our Forever Friend❀️
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7 days ago

31 CommentsComment on Facebook

I’m heartbroken to read of the passing of Frankie such a beautiful soul .. I loved our chats .. I’m so glad I hugged him the last time we met .. rest in peace you wonderful man πŸ’•

Rest in peace Frankie πŸ™You will be missed by all and will always be remembered for your friendship. From your little pal Roisin 😒❀

Fankie was a true Gentleman, always very happy and ready to help everyone. Rip😦

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A reminder that booking forms and programme for our AGM have been sent to all members and must be returned by this Wednesday, April 10th. If you have not received the info please email njordan@sbhi.ie ASAP ... See MoreSee Less

1 week ago

4 CommentsComment on Facebook

I didn't get entails of the AGM

Hi there πŸ˜ƒ I've sent an email as I've not received any details. Can you confirm ye have received it. Thanks

Mine should have gone back to ye the other day by email. Can you let me know ye got it please ❀️❀️❀️

A message from Gerry Maguire, our Chief Executive Officer: 

The Easter break coincided with the clocks going forward to signal summertime. This is a rare enough event and this year made it feel like a new beginning, a chance to re-energise. This is what we are doing with our SBHI website. The website has looked a bit jaded over the last while and certainly in need of upgrading and updating. With that in mind, following a lot of work, especially by our Communications Officer Noelle, we are using this time of change of season to relaunch our much improved website. I would like as many of you as possible to visit the website and let us know your views on it. Like everything else in Spina Bifida Hydrocephalus Ireland, this website isnt the property of me or the staff, it is your website and therefore it is crucial that you are happy with it.

Check out the new site at https://sbhi.ie πŸ˜ƒ

A message from Gerry Maguire, our Chief Executive Officer:

''The Easter break coincided with the clocks going forward to signal summertime. This is a rare enough event and this year made it feel like a new beginning, a chance to re-energise. This is what we are doing with our SBHI website. The website has looked a bit jaded over the last while and certainly in need of upgrading and updating. With that in mind, following a lot of work, especially by our Communications Officer Noelle, we are using this time of change of season to relaunch our much improved website. I would like as many of you as possible to visit the website and let us know your views on it. Like everything else in Spina Bifida Hydrocephalus Ireland, this website isn't the property of me or the staff, it is your website and therefore it is crucial that you are happy with it.''

Check out the new site at sbhi.ie πŸ˜ƒ
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2 weeks ago
Yesterday we were delighted to host a Wheelchair Skills Workshop provided by Go-Kids-Go in TUS Athlone who provided lunch for us. GoKidsGo provided extra wheelchairs for parents and siblings to get involved in testing out their wheelchair skills and were invited to take part in all aspects of the workshop.

The skills worked on through out the day included moving the wheelchair in different directions, getting over small bumps, popping wheelies, mounting kerbs of different heights, road safety and safety when using path ways beside a road, techniques for wheeling up a slope and down a slope, techniques for emergency evacuation when on the upper floor of a building, avoiding falling out of your wheelchair and what to do if you do fall out of your wheelchair. 
This was broken up with games including wheelchair dancing and wheelchair basketball.

Roy from Go-Kids-Go offered lots of support to everyone participating to try out new skills/techniques safely and to build confidence.Image attachmentImage attachment+Image attachment

Yesterday we were delighted to host a Wheelchair Skills Workshop provided by Go-Kids-Go in TUS Athlone who provided lunch for us. GoKidsGo provided extra wheelchairs for parents and siblings to get involved in testing out their wheelchair skills and were invited to take part in all aspects of the workshop.

The skills worked on through out the day included moving the wheelchair in different directions, getting over small bumps, popping wheelies, mounting kerbs of different heights, road safety and safety when using path ways beside a road, techniques for wheeling up a slope and down a slope, techniques for emergency evacuation when on the upper floor of a building, avoiding falling out of your wheelchair and what to do if you do fall out of your wheelchair.
This was broken up with games including wheelchair dancing and wheelchair basketball.

Roy from Go-Kids-Go offered lots of support to everyone participating to try out new skills/techniques safely and to build confidence.
... See MoreSee Less

2 weeks ago

5 CommentsComment on Facebook

Looks great fun wish I knew about it growing up Do you do 1 for adults in dublin

Great work everyone. πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ» I remember our grandson doing the workshop

Thanks for organising a great day.

View more comments

Here are some of the fun activities we have planned for our sports day next weekend πŸ˜ƒ

If you would like to come along please let us know by emailing sreville@sbhi.ie before this Thursday!

Here are some of the fun activities we have planned for our sports day next weekend πŸ˜ƒ

If you would like to come along please let us know by emailing sreville@sbhi.ie before this Thursday!
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2 weeks ago

1 CommentComment on Facebook

Hello πŸ™‚ What’s the suitable age for this?

courses

SBHI Courses

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today