In 1968 a small group of parents whose children had spina bifida and/or hydrocephalus established a voluntary organisation which would highlight awareness of these two conditions and support families, individuals and carers who were affected.
Our purpose is to be a powerful community, united by spina bifida and hydrocephalus, and moving together towards fulfilled futures.
These parents were pioneers who laid the foundations for what is now a nationally recognised organisation. Their optimistic spirit encouraged them to affect real change for people who had the conditions, their families and carers. Find out more>>
We aim to foster an environment in which every person affected by spina bifida and hydrocephalus can lead a fulfilled life.
We provide essential information, support and advice to everyone living with spina bifida and/or hydrocephalus.
We believe in, and seek to realise, a socially inclusive and equal society for all people living with spina bifida and/or hydrocephalus.
We enable our members to get the very best from health, education, and social services.
We lobby the Government to significantly improve services and all necessary access for people living with spina bifida and hydrocephalus.
With busy lives, it can be hard to find time to volunteer. However, the benefits of volunteering are enormous to you, your family, SBHI, and your community. The right opportunity can help you find friends, work with people affected by spina bifida and/or hydrocephalus, learn new skills, and even advance your career. Volunteering can also help protect your mental and physical health.
Find out more1 in 1,000 live births are affected by hydrocephalus.
Around 40 babies are born with spina bifida each year in Ireland.
The number of people living with spina bifida and/or hydrocephalus who attend the SBHI Respite and Recreation programme each year.
Spina Bifida Hydrocephalus Ireland (SBHI) was founded fifty years ago and continues to provide essential support to everyone affected by the conditions.
We aim to foster an environment in which every person affected by spina bifida and hydrocephalus can lead a fulfilled life.
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