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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

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🎉The SBHI Open Opportunity Gala Ball is back this Winter! 🎉

We’re delighted to invite you to join us at our SBHI Open Opportunity Service Winter Gala Ball 2026, proudly hosted by our members and staff on 21st November from 5p.m. to late.

Join us for an unforgettable evening celebrating inclusion, community, exchange and connection, with live entertainment from “Who's Eddie”, fantastic raffle prizes, a professional Photo Shoot on the Red Carpet, a Prosecco/Nosecco Reception and plenty of fun and craic!

Come celebrate with us — it’s a night not to be missed!✨ Early booking is recommended to reserve your place and any specific dietary requirement! ✨

📅 Date: 21st November 2026
📍 Venue: Louise Fitzgerald Hotel, Dublin D22 X5N7
🕔 Time: 5:00 PM – late

🎟️ Book your place here:
form.jotform.com/231432665367055
We look forward to welcoming you all and celebrating together.
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12 hours ago

1 CommentComment on Facebook

Good morning! How much are the tickets please?

Today is World Hydrocephalus Day! @hydroassoc
In this video our members shared some things they wished more people knew about Hydrocephalus 🧠 Soina Bifida Hydrocephalus Ireland is here to look after anyone in Ireland who lives with Hydrocephalus 💕 @ifsbh
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1 day ago
Are you part of the SBHI community and thinking of returning to employment, but need to upskill?

We have funds to support with that!

If you are currently unemployed, thinking of returning to employment and looking to upskill or retrain, we have a limited fund available to support you with affording course costs. 

All you need to do is contact Claire Mc Cormack at 0871364532 or cmccormack@sbhi.ie

Grant funded by Energy for Generations ESB Ireland.

Are you part of the SBHI community and thinking of returning to employment, but need to upskill?

We have funds to support with that!

If you are currently unemployed, thinking of returning to employment and looking to upskill or retrain, we have a limited fund available to support you with affording course costs.

All you need to do is contact Claire Mc Cormack at 0871364532 or cmccormack@sbhi.ie

Grant funded by "Energy for Generations" ESB Ireland.
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5 days ago

SBHI Introduction to I.T. information sessions.

Boost your I.T knowledge, ask questions and learn something new! The two sessions will cover:

>The basics of email
>The basics of Microsoft Word
>Basic language used in computing

This is aimed at anyone that wants a refresher in computers or anyone that is new to using these elements. Dates are Thursday 17th and 24th of September at 7.30pm.

Contact Zoe if you have an interest in any area mentioned above. Email zcole@sbhi.ie or Text/Call 087-3483268.

The SBHI What Works For Me Programme is co-funded by the Government of Ireland and the European Union.
#EUinmyregion
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1 week ago

The Launch of the Cork SBHI Branch will take place in the Rochestown Park Hotel at 3pm on Sunday, September 27th.

Refreshments will be served from 2.30pm

All welcome. This will be an opportunity to discuss what the launch of the Cork SBHI Committee could mean for people with spina bifida and Hydrocephalus in Cork. We also want members to serve on on the new Branch Committee.

We look forward to hearing from you. Please confirm your attendance by sending a message to Donal at 087 612 0591.
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3 weeks ago

Our September Newsletter has landed! View it here: mailchi.mp/59067a4ed0d7/sbhi-newsletter-17343047 ... See MoreSee Less

3 weeks ago
⛳️The Spina Bifida Hydrocephalus Ireland Annual Charity Golf Classic 2026⛳️

We are so pleased to let you know that this years Annual Golf Classic which took place on August 14th in Palmerstown House successfully raised €5705.33! 

A massive thank you to so many who were involved in making this event a successful fundraiser which helps us to continue providing life saving supports and services to those in Ireland living with Spina Bifida and Hydrocephalus. 

We would like to thank:

🏌️ Our Flagship Sponsors: Orchard Print ( https://www.orchardprint.com/ ) and Finn and Co ( https://www.finnandco.ie/ ) who so kindly not only contributed to the costs of the event but also supplied our fabulous goody bags and reusable coffee cups for each attendee!
🏌️John from Rosgal Ltd. who provided us with an absolutely incredible prize for our raffle - which was won by a very happy man! We will share pictures of the winners at the event once the match is played. 
🏌️ All our golfers- we had over 60 golfers who all played exceptional and without them there would be no Golf Classic! Great to have a lovely mix of familiar faces alongside new ones.
🏌️Niall at FYREFLI and also Dooley Insurances who sponsored tee boxes on the day- these two companies are long-time Friends of SBHI and we are so grateful for their continued support.
🏌️Peter Landy- who is always there on the day, and in the leadup, doing incredible work to ensure the event is a success.

And to all who done something as simple as sharing a post, buying  a raffle ticket, mentioning the classic to a friend etc. Word of mouth is essential at building this annual event and we appreciate and effort to help its growth, big or small!

A huge thank you also to Ricardo- our volunteer photographer for the day. He shot incredible photographs - all of which can be viewed on our website here: https://sbhi.ie/gallery/annual-sbhi-charity-golf-classic-2026/ It is great to have these memories captured. Thank you so much Ricardo!

Next years Annual Charity Golf Classic has already been secured for Friday, the 13th of August - returning to the amazing Palmerstown House! We hope to see you there!

Thank you again to all who supported this fundraiser. 💙🧡Image attachmentImage attachment+3Image attachment

⛳️The Spina Bifida Hydrocephalus Ireland Annual Charity Golf Classic 2026⛳️

We are so pleased to let you know that this year's Annual Golf Classic which took place on August 14th in Palmerstown House successfully raised €5705.33!

A massive thank you to so many who were involved in making this event a successful fundraiser which helps us to continue providing life saving supports and services to those in Ireland living with Spina Bifida and Hydrocephalus.

We would like to thank:

🏌️ Our Flagship Sponsors: Orchard Print ( www.orchardprint.com/ ) and Finn and Co ( www.finnandco.ie/ ) who so kindly not only contributed to the costs of the event but also supplied our fabulous goody bags and reusable coffee cups for each attendee!
🏌️John from Rosgal Ltd. who provided us with an absolutely incredible prize for our raffle - which was won by a very happy man! We will share pictures of the winners at the event once the match is played.
🏌️ All our golfers- we had over 60 golfers who all played exceptional and without them there would be no Golf Classic! Great to have a lovely mix of familiar faces alongside new ones.
🏌️Niall at FYREFLI and also Dooley Insurances who sponsored tee boxes on the day- these two companies are long-time 'Friends of SBHI' and we are so grateful for their continued support.
🏌️Peter Landy- who is always there on the day, and in the leadup, doing incredible work to ensure the event is a success.

And to all who done something as simple as sharing a post, buying a raffle ticket, mentioning the classic to a friend etc. Word of mouth is essential at building this annual event and we appreciate and effort to help its growth, big or small!

A huge thank you also to Ricardo- our volunteer photographer for the day. He shot incredible photographs - all of which can be viewed on our website here: sbhi.ie/gallery/annual-sbhi-charity-golf-classic-2026/ It is great to have these memories captured. Thank you so much Ricardo!

Next year's Annual Charity Golf Classic has already been secured for Friday, the 13th of August - returning to the amazing Palmerstown House! We hope to see you there!

Thank you again to all who supported this fundraiser. 💙🧡
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3 weeks ago

1 CommentComment on Facebook

Brilliant ,well done everyone. 👏👏

Halloween Party

 

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