info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here
Today Tuesday 27th 2024 marks the one-month countdown to #makewayday24 which is coming to a street where you live on Friday 27 September.
Make Way Day is an annual campaign to make way on our streets for people with disabilities and to raise public awareness about the problems caused by obstacles blocking footpaths.
People with disabilities and ally’s will be out and about on 27 September with local organisations to highlight obstacles such as cars or vans parked on a footpath, bicycles/motorbikes chained to lamp posts, illegally placed sandwich boards, forgotten bins, barrels and other obstructions.
We will also be using our online survey tool again this year to gather information on the obstacles that people meet on their streets. The tool will be available on the Make Way Day website - www.makewayday.com.
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Devastated to hear about the loss of one of our longest serving members, Gerard Horrigan.
Ger was one of life’s true gentlemen and has left a void in SBHI that will be impossible to fill.
Sleep well Ger 🧡💙
34 CommentsComment on Facebook
So very sorry to read this. May Ger rest peacefully condolences to his family and friends
RIP Gérard condolences to all his friends and family
Such sad news. Deepest sympathies to all his family and friends. SBHI will miss him
Information Session on Epilepsy Awareness for Families/Carers
Epilepsy Ireland work with families, schools, employers and many more people living or supporting individuals with the condition. This information session will be delivered by Edel Curran (Training & Quality Manager) and aims to ensure that families have a clear understanding of the condition and how they can help their family member.
The session will cover:
• What is epilepsy
• Types of seizures
• Safety & seizures - Seizure First Aid
• Triggers & lifestyle
• Treatment
• When to call an ambulance
• Preparing a care plan
We will also do a demonstration on the correct administration of Buccal Midazolam (Buccolam), and it would be helpful if you have this beside you during the session to do the safety checks.
If you have an antibiotic/calpol/nerofen syringe and some water we can carry out a demonstration of how to administer correctly.
WHEN: Monday, 9th September 2024 from 7pm-8.30pm
SPEAKER: Edel Curran (Training & Quality Manager)
WHERE: Your home, via Zoom!
Please register with Claire by emailing cmccormack@sbhi.ieInformation Session on Epilepsy Awareness for Families/Carers
Epilepsy Ireland work with families, schools, employers and many more people living or supporting individuals with the condition. This information session will be delivered by Edel Curran (Training & Quality Manager) and aims to ensure that families have a clear understanding of the condition and how they can help their family member.
The session will cover:
• What is epilepsy
• Types of seizures
• Safety & seizures - Seizure First Aid
• Triggers & lifestyle
• Treatment
• When to call an ambulance
• Preparing a care plan
We will also do a demonstration on the correct administration of Buccal Midazolam (Buccolam), and it would be helpful if you have this beside you during the session to do the safety checks.
If you have an antibiotic/calpol/nerofen syringe and some water we can carry out a demonstration of how to administer correctly.
WHEN: Monday, 9th September 2024 from 7pm-8.30pm
SPEAKER: Edel Curran (Training & Quality Manager)
WHERE: Your home, via Zoom!
Please register with Claire by emailing cmccormack@sbhi.ie,
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💙🧡
11 CommentsComment on Facebook
Good luck to everyone involved
Good luck everyone!!😊🇮🇪
Good luck guys! You can do it
Meet one of our speakers who will speak at our Empowering Connections Social Event 🤗🤗😁😁
For the last three years, Gerry Maguire has been CEO of Spina Bifida Hydrocephalus Ireland. This has been something of a full circle for him as he spent a long time in the public service and in the last Government was a Special Advisor to the Minister for Disabilities.
Gerry lives with Spina Bifida and when he was born his parents were advised to put him in a home and forget about him and go and enjoy their three other children. Thankfully, his parents did not follow this advice and instead did everything they could to help Gerry fulfil his potential. Gerry described his journey in a searingly honest way in his autobiography, “Walk Away and Forget Him”
Join us on September 11th from 6.30pm until 9pm ìn the Talent Garden Inn Glasnevin Dublin.
Witness the wonderful Gerry in person sharing this wisdom, strength and courage through his journey as a disabled person
I'm very to have Gerry apart of the VERY FIRST EMPOWERING CONNECTIONS SOCIAL EVENT SPECIFICALLY AIMED AT THOSE LIVING WITH A DISABILITY OR HEALTH CONDITION
AN EVENING of EMPOWERMENT 😁😁😁😊
Link on the link to book your ticket for the evening
www.eventbrite.com/e/empowering-connections-tickets-872930216777
#EmpoweringAbilities #EmpoweringConnections #Cometogether #BookToday
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Do you think you could benefit from self-development sessions?
We have funds available to support our members in gaining the confidence to return to work.
These can be used towards :
Life Coaching
Alternative Therapy
Counselling
Career Guidance
And more!
To apply for funding please complete this form:
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Id love to do them
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
