info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
A Day in the Life – Episode 4: Digiweb!
For Episode 4 of our A Day in the Life series, we’re stepping into the world of technology with Digiweb, where we explore the different roles and opportunities available within the tech industry!
From customer service to technical support, we’re showcasing how a range of skills, talents and abilities can contribute to a successful career in tech. 💼
This episode highlights that there are opportunities for everyone when workplaces recognise individual strengths and provide the right support. 🙌
A huge thank you to Digiweb for welcoming us and helping us shine a light on inclusive employment! 💙
You can watch episode 4 here :
vimeo.com/1235799975?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
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🎭🌟 THE SBHI TALENT SHOW IS TOMORROW! 🌟🎭
Join us TOMORROW, Saturday 24th October in the Talbot Hotel Carlow, for a fantastic afternoon showcasing the incredible talents and abilities of those living with Spina Bifida and/or Hydrocephalus! 💙🧡
As part of Spina Bifida Hydrocephalus Awareness Week, we’re bringing everyone together for an afternoon full of creativity, music, dancing, artwork, and so much more!
📍 Where: Talbot Hotel, Carlow
📅 When: Tomorrow, Saturday 24th October
⏰ Time: 12pm–4pm
🎟️ Entry: FREE!
Whether you’re coming along to support a loved one, connect with the community or simply enjoy a wonderful afternoon of talent, we’d love to see you there!
#SBHI #SpinaBifida #Hydrocephalus #SBHAwarenessWeek #TalentShow #SeeMyAbilityNotMyDisability
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Tomorrow is World Spina Bifida and Hydrocephalus day IFSBH 💙 Join us from 11am - 1pm for a coffee morning at various locations throughout the country 🇮🇪
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Still no coffee morning in the Dublin City centre?! What about us on the northside?
Im only seeing this post, also!
✈️ Introducing the SBHI Hydrocephalus Travel Guide
With the right preparation and information, you can feel more confident when planning your next adventure while managing Hydrocephalus.
Our Hydrocephalus Travel Guide is packed with practical tips to help you prepare for your journey, including:
🩺 Carrying essential medical information.
💊 Planning and packing your medication safely.
🏥 Checking healthcare facilities, insurance and accessibility at your destination.
🛫 Preparing for airport security and requesting special assistance.
🚗 Planning road travel and checking relevant driving guidelines.
📌 Save this post for your next trip and share it with someone who might find it helpful!
For further information or support with planning a journey, contact your SBHI Family Liaison Officer. 💙
#sbhi #hydrocephalus #spinabifida #sbhawarenessweek #awarenessweek #traveltips #hydrocephalusawareness #TravelWithConfidence
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🎬 A Day in the Life – Episode 3: An Táin Arts Centre, Dundalk! 🎭
For Episode 3 of our A Day in the Life series, we’re heading to An Táin Arts Centre in Dundalk! ✨
This time, we’re getting a glimpse behind the scenes of life in an arts centre, exploring the different roles, opportunities and experiences involved in both working and volunteering in the arts.
From bringing creativity to the community to helping keep the arts alive, there’s so much more to discover than what happens on stage!
Join us as we continue showcasing the wonderful workplaces, community spaces and opportunities that are out there.
📺 Watch Episode 3 now and discover A Day in the Life at An Táin Arts Centre!
vimeo.com/1235636439?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
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We were delighted to have 92.5 Phoenix FM in our Open Opportunity Day service on Tuesday helping us spread awareness during Spina Bifida Hydrocephalus Awareness Week.
They interviewed staff and members to allow listeners to gain a broad view of living with Spina Bifida and/or Hydrocephalus and how SBHI provide various vital services and supports to the Spina Bifida Hydrocephalus Community.
You can listen back to the show here: www.mixcloud.com/925PhoenixFM/d15-today-tuesday-20-10-26-1000-1200/?utm_medium=share&utm_source=s...
#SpinaBifida#Hydrocephalus#awarenessweek#seemyabilitynotmydisability
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It was amazing to interview the staff can't wait for next year 🙂
Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek
❗Did You Know ❓
Hydrocephalus can develop at any age.
Although it is often diagnosed in babies and children, hydrocephalus can also develop in adults. Causes vary, and symptoms and treatment depend on the individual.
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**A Day in the Life – Episode 2: Avida Boutique, Ardee!** ✨
Take a look inside the world of retail with us!
In Episode 2 of our 'A Day in the Life' series, our Peer Mentor Mary visits Avida Boutique in Ardee to explore the retail industry and give us an insight into what working in this sector can look like.
From customer service to the day-to-day tasks that keep a shop running, we’re showcasing the different roles, skills and opportunities available in retail. 🛍️
Through this series, we hope to break down barriers, build confidence and help those living with Spina Bifida and/or Hydrocephalus feel more comfortable exploring the world of work. Because everyone deserves the opportunity to discover their potential! 💙
A huge thank you to Avida Boutique for welcoming us and helping us shine a light on the opportunities available in retail!
🎬 **Watch Episode 2 here:
vimeo.com/1235611618?share=copy&fl=sv&fe=ci
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
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Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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