info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Do you live with Spina Bifida and/or Hydrocephalus? Are you passionate and committed about supporting your peers with their further education and employment goals? Then we want to hear from you.
We are looking for a part-time Peer Mentor to commence a 4 year contract from January 2025 (extension dependent on funding).
The role of the Peer Mentor is to provide empathy, support and guidance from the perspective of someone with in-depth knowledge and awareness of the challenges faced by those with Spina Bifida and Hydrocephalus when navigating the world of further education and employment.
If you are interested in this role please email your CV to education@sbhi.ie before the 20th of December 2024
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December 12th is National Christmas Jumper Day! We would love if you chose Spina Bifida Hydrocephalus Ireland as your chosen charity this year!
All funds we raise go directly to helping improve the lives of those in Ireland living with Spina Bifida and/or Hydrocephalus and their families.
You can create your online fundraising page here ( Enter SBHI or Spina Bifida Hydrocephalus Ireland in the 'Chosen Charity' box) : www.idonate.ie/createfundraiser.php?event_id=23885&chid=0
Then, decide what way you, or your business, would like to celebrate Christmas Jumper Day and fundraise.
Here are some ideas:
🎄 Organise a Christmas Jumper Day for the office or team Zoom call and ask participants to donate to your Christmas Jumper Day fundraising page.
🎄Ask your boss if they will match all donations or donate to the page of the person who wins 'Best Christmas Jumper' (put it to a vote!)
🎄Organise a Festive Jumper Friday for your school or creche. Everyone donates to wear their Christmas jumper!
🎄Host a Christmas Jumper Brunch or Dinner with friends and ask everyone to donate the price of a coffee or drink to your fundraising page.
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13 CommentsComment on Facebook
All the beautiful people. Great photos.
This sbh family must have enjoyed the day, but I am wondering.Where are the youths and the young ones.I am part of this family,though am in Uganda,maximum respect
Gorgeous pictures from a great night
If you have Spina Bifida and/or Hydrocephalus and are interested in support with writing your C.V. or cover letter, learning about personal skills for the workplace and building your confidence to interview this is for you!
Join us tomorrow and December 5th from 10am-1pm.
What to expect on the day:
✅ CV Building and cover letter writing– Learn how to craft standout CV & cover letters that showcase your strengths.
✅ Interview Skills – Practice mock interviews and get tips to impress potential employers.
✅ Job Search Techniques – Discover effective ways to find and apply for the right job.
✅ Networking & Confidence Building – Boost your confidence and connect with others on the same journey.
Whether you’re new to the job market or looking to enhance your skills, this event will provide the tools and guidance you need to succeed.
Please email whatworksforme@sbhi.ie to register
#euinmyregion
1 CommentComment on Facebook
l like to up my CV It needs an up date
❗️Important - this event will now take place in the form of a webinar over two days on both Thurs Nov 28th and Thurs Dec 5th from 10am - 1pm.
Please email whatworksforme@sbhi.ie to register*Get Job Ready Event - The Clayton Cork City Hotel*
We are hosting a free, one-day workshop to help you prepare for the job market and improve your employability skills!
Date: Thursday, 28th November 2024
Time: 10 AM - 4 PM
Location: Clayton Cork City Hotel
Lunch will be provided
What to expect on the day:
✅ CV Building and cover letter writing– Learn how to craft standout CV & cover letters that showcase your strengths.
✅ Interview Skills – Practice mock interviews and get tips to impress potential employers.
✅ Job Search Techniques – Discover effective ways to find and apply for the right job.
✅ Networking & Confidence Building – Boost your confidence and connect with others on the same journey.
Participants will receive a Goodie bag of items to help with their job search.
Spaces are limited, so make sure to register by emailing whatworksforme@sbhi.ie to secure your spot!
Whether you’re new to the job market or looking to enhance your skills, this event will provide the tools and guidance you need to succeed.
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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