info@sbhi.ie 
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Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Wishing a warm welcome to Caroline and a best of luck to Jessica ❤️
As our Carlow/Kilkenny/Waterford/Wexford/South Tipperary Family Liaison Officer, Jessica, leaves us for her maternity leave we are delighted to welcome Caroline to the SBHI team to look after her area while she is gone.
Caroline will be hosting the upcoming Coffee morning in the Talbot Hotel, Carlow so it would be a perfect place to meet her for the first time!
> 29th of April from 11am-1pm<
A Little bit about Caroline:
''I'm looking forward to new challenges, working with SBHI members and new colleagues. I've received a really warm welcome from the team so I'm feeling very positive about my new role. Outside of work I'm kept busy running a mammy-taxi service for my four teenage/adult children. I unwind by walking my dogs, Goose and Rosie, along the canal and I love gardening and spending too much time and money in garden centres. I give back a little as a Community First Responder.''
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Hello Caroline Best of luck Jessica kerp us post on the new arrival
Welcome Caroline look forward to meeting you and having a chat We are in the kilkenny area
Our Spina Bifida Hydrocephalus Coffee Mornings continue!
As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our second coffee morning of the year. There are four coffee mornings organised throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.
The coffee mornings will all be held on Wednesday the 29th of April from 11am - 1 pm in the following locations:
📌Mc William Park Hotel, Claremorris
📌Hodson Bay Hotel, Athlone
📌Gibson Hotel, Dublin
📌The Talbot Hotel, Carlow
📌Kilmore Hotel, Cavan
📌Silver Springs, Cork City
📌Talbot Hotel, Stillorgan
Will you be joining us? We would love to see you there ❤️
1 CommentComment on Facebook
I am very much interested 😊🥰🌹
Last week, with funding so kindly provided by the @irishyouthfoundation we were able to organise @gokidsgo to facilitate a Wheelchair Skills Workshop for our younger members and their families. These workshops are always a great day out - fun but also incredibly educational and provide training on various scenarios faced by wheel chair users and how to navigate them safely. 💙
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There are still two places left on tomorrow's wheelchair skills workshop - lunch is included. If you are free join us for a fun, and educational day!
This workshop is so kindly being funded the Irish Youth FoundationThis workshop is so kindly being funded the Irish Youth Foundation
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SBHI April Newsletter 📃 -
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Welcome to our April newsletter. The clocks have gone forward, the evenings are brighter, and the daffodils are in full bloom. So let’s all wave goodbye to one miserable rain-filled winter! March wa...0 CommentsComment on Facebook
We have THREE SPACES REMAINING for our upcoming Wheelchair Skills Workshop! Get in touch with Claire if you and your family would like to join
This workshop is so kindly being funded the Irish Youth FoundationThis workshop is so kindly being funded the Irish Youth Foundation
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Reminder of our upcoming webinar on Online Safety When Making Payments!🛡️ Online Safety Awareness Session
Stay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and find out what to do if you encounter them.
📅 Date: Wednesday 1st April
🕛 Times: 12:00 PM and 7:00 PM (choose the session that suits you)
💻 Location: Online
To register, contact Zoe at zcole@sbhi.ie or 087 348 3268.
Stay informed. Stay protected.
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Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
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If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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