info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek
❗Did You Know ❓
Spina bifida develops early in pregnancy.
Spina bifida occurs when the neural tube, which develops into the brain and spinal cord, does not close completely during early pregnancy. It can affect the spine and the nerves connected to it.
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🎬 Introducing our Spina Bifida Hydrocephalus Awareness Week video series: A Day in the Life!
As part of our What Works for Me programme, we’re delighted to introduce A Day in the Life — a new six-part video series hosted by our Peer Mentor, Mary! 💙
Through a series of interviews with people working across different industries, from libraries and retail to hospitality and technology, we’re exploring what working life really looks like.
🎯 Our aim? To break down barriers, challenge assumptions and help you, our members feel more confident about entering the workplace. By hearing real experiences and getting an insight into different working environments and roles , we hope to show that there are many different paths to finding work that works for you!
📍 Episode 1: Ardee Library
We’re kicking off the series at Ardee Library, where we take a closer look at working in a library, hear about the day-to-day responsibilities involved and explore what a career in this environment can look like.
Whether you’re exploring career options, thinking about returning to work or simply curious about different industries, this series is for you!
▶️ Watch Episode 1 here: vimeo.com/1235108531?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
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An incredible story about an incredible family 💙 Best of luck to Michael, and his team who are running this Sunday - we will be cheering you all on from the side-lines 👏❤️ Every step for Luca! 🏃♂️
Kilkenny dad Mikey McDonald is taking on the Dublin Marathon this weekend for a cause incredibly close to his heart – his three-year-old son Luca, who was born with Spina Bifida.
Inspired by Luca's incredible strength, determination and infectious smile, Mikey is hoping to raise vital funds for Spina Bifida Hydrocephalus Ireland, while highlighting the challenges faced by families of children with disabilities.
📰 Read Mikey and Luca's inspiring story below and find out how you can support his fundraising efforts!
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What a beautiful morning at our annual Spina Bifida Hydrocephalus Remembrance Day 💕 We shared stories, tears and smiles while remembering those we have lost 💖 #spinabifida #hydrocephalus #sbhawarenessweek
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Hi I'm sorry I missed this I don't know if any of yous remember my little sister rosaleen Carey she went to that school
Beautiful 🙏
Sorry and then worked over in the office s she passed away year yesterday and was wondering could I please be able to get her name in garden please or be able to do something
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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