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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Today is national ‘Take Your Pet To Work Day’ 🐶 so of course our SBHI doggies had to get involved! They are happily munching away on all of the fabulous treats we got from @petmania_ireland in a hamper after winning their Pet Friendly Workplace Ruby Award ❤️Image attachmentImage attachment+3Image attachment

Today is national ‘Take Your Pet To Work Day’ 🐶 so of course our SBHI doggies had to get involved! They are happily munching away on all of the fabulous treats we got from @petmania_ireland in a hamper after winning their Pet Friendly Workplace Ruby Award ❤️ ... See MoreSee Less

4 days ago

1 CommentComment on Facebook

How Much is That Doggy in the Window You know The one With The Wagggggggggggggggley Tail 🫶🤣🤣🤣🤣🤣🤣🤣🤣🩵💛🩵💛🩵💛🩵💛🩵💛🩵💛🩵💛 Woof Woof

https://www.strava.com/athletes/112673254?utm_source=android_share&utm_medium=social&share_sig=DEWKILIZ1749729980&_branch_match_id=1324684807911702441&_branch_referrer=H4sIAAAAAAAAA8soKSkottLXLy4pSixL1EssKNDLyczL1nfKKzMPqwh2swhJsq8rSk1LLSrKzEuPTyrKLy9OLbJ1TUlPBQDofBceOwAAAA%3D%3D

Ilie is on his 11th day of cycling from the South of Norway to the North. He has travelled an INCREDIBLE 934.7KM so far! You can track his progress via Strava on the link above and make a donation via the link below! Thank you so much Ilie 💙

https://www.idonate.ie/fundraiser/ilies3000km

www.strava.com/athletes/112673254?utm_source=android_share&utm_medium=social&share_sig=DEWKILIZ17...

Ilie is on his 11th day of cycling from the South of Norway to the North. He has travelled an INCREDIBLE 934.7KM so far! You can track his progress via Strava on the link above and make a donation via the link below! Thank you so much Ilie 💙

www.idonate.ie/fundraiser/ilies3000kmWe”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre.
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4 days ago
What a fantastic and beautiful day was had yesterday when the Service Members from SBHI Open Opportunity Service were invited to a garden party at Áras an Uachtaráin hosted by President Michael D. Higgins and Sabina Higgins to celebrate Community Groups.

This event, a regular tradition at the Presidents residence, celebrates and recognizes individuals and groups who have made a significant contribution to their communities.

Go Raibh Míle Mhaith Agat do Gach Duine san Áras agus chuig an tUachtarán agus Sabina. Everyone was so kind, caring and welcoming, a wonderfully inclusive day!Image attachmentImage attachment+Image attachment

What a fantastic and beautiful day was had yesterday when the Service Members from SBHI Open Opportunity Service were invited to a garden party at Áras an Uachtaráin hosted by President Michael D. Higgins and Sabina Higgins to celebrate Community Groups.

This event, a regular tradition at the President's residence, celebrates and recognizes individuals and groups who have made a significant contribution to their communities.

Go Raibh Míle Mhaith Agat do Gach Duine san Áras agus chuig an tUachtarán agus Sabina. Everyone was so kind, caring and welcoming, a wonderfully inclusive day!
... See MoreSee Less

5 days ago

11 CommentsComment on Facebook

Aw fabulous day. Looked like fun.

Well done Leannan.i am sure you all had a lovely afternoon . Beautiful photos Leannan we are all proud for you ❤️ 👏

Great pictures. Hope you all enjoyed the day

View more comments

Did you know some of our members are currently on the first ever SBHI Cruise?? ⚓️⚓️ We can’t wait to tell you all about it upon their return!

Did you know some of our members are currently on the first ever SBHI Cruise?? ⚓️⚓️ We can’t wait to tell you all about it upon their return! ... See MoreSee Less

2 weeks ago

20 CommentsComment on Facebook

Looking at the photos all week.A fabulous opportunity for our members. Louise and team Well done and to everyone involved. Looks like you all had a Great time.

I wish I was there with yee. Have an amazing safe time.

Fabulous photo....I hope everyone had a great time.... wonderful to have such an amazing team of people dedicated to organizing such brilliant opportunities/experiences...well-done to everyone involved in the organization behind the scenes. You guys really do fantastic work 🙏👏🥰

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We”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre.

We”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre. ... See MoreSee Less

2 weeks ago

5 CommentsComment on Facebook

Wishing you athe very best of luck and good weather...

Best of luck

Best of luck llie

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New Social Group!

Curious about a new confidence-building social group for SBHI members?
Join us for a relaxed online information session on Thursday 12th June at 10am to hear what it’s all about, ask questions, and help us choose the group name!

No pressure, no presentations — just a chat to see if it might be something for you.

Let us know if you interested by emailing whatworksforme@sbhi.ie
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2 weeks ago

1 CommentComment on Facebook

Tracy O'Neill

Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day!Image attachmentImage attachment+5Image attachment

Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day! ... See MoreSee Less

3 weeks ago

6 CommentsComment on Facebook

A beautiful ceremony ❤️

It was great to have you there with us Helen Goodson Finglasxx

What a great idea. So many wonderful people deserve to be remembered

View more comments

Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day!Image attachmentImage attachment+1Image attachment

Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day! ... See MoreSee Less

3 weeks ago

2 CommentsComment on Facebook

Lovely

Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day.! People who have been in the Spina Bifida /Hydrocephalus group have had people who have done the Church gate collecting and who have passed away and the members who have been always been remembered and I am very happy to see that the Spina Biffida / Hydrocephalus group are absolutely right that there should be a special Day of the dead parents and members and the family's of the dead do remember the dead every day anyway

courses

SBHI Courses

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

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    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today

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