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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Join Up-coming Events & Webinars

We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Pictures from this years Vhi Womens Mini Marathon

We are so grateful to the 9 people who joined #TEAMSBHI and have raised over €8,200 and counting! Absolutely incredible!!

Thank you to each and every one of you - looking forward to next year already 😊

https://sbhi.ie/gallery/vhi-womens-mini-marathon-2024/Image attachmentImage attachment+Image attachment

Pictures from this year's Vhi Women's Mini Marathon

We are so grateful to the 9 people who joined #TEAMSBHI and have raised over €8,200 and counting! Absolutely incredible!!

Thank you to each and every one of you - looking forward to next year already 😊

sbhi.ie/gallery/vhi-womens-mini-marathon-2024/
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6 days ago

13 CommentsComment on Facebook

Great Day well done πŸ™ŒπŸŽ–

Well done to all who did the mini marathon πŸ’œπŸ§‘πŸ’œπŸ§‘πŸ₯‡πŸƒπŸ‘πŸ»πŸ‘πŸ»

Well done Everyone πŸ’ͺ

View more comments

Here are the dates for our upcoming Coloplast Clinics!

Wednesday 12th of June and Wednesday 10th of July

To arrange your clinic appointment on either date or to arrange a virtual consultation (phone or online) with experienced nurse Debbie , please contact the clinical coordinator on 
01 9190192 or email nurseteam@coloplast.com

Here are the dates for our upcoming Coloplast Clinics!

Wednesday 12th of June and Wednesday 10th of July

To arrange your clinic appointment on either date or to arrange a virtual consultation (phone or online) with experienced nurse Debbie , please contact the clinical coordinator on
01 9190192 or email nurseteam@coloplast.com
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1 week ago
Which breakfast would you prefer for race day??

Here are some Race Day breakfast ideas πŸ˜„

Vhi Womens Mini MarathonImage attachment

Which breakfast would you prefer for race day??

Here are some Race Day breakfast ideas πŸ˜„

Vhi Women's Mini Marathon
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2 weeks ago

2 CommentsComment on Facebook

When I used to be able to walk the women's mini Marathon I always had oats fruit & yougert good luck to all doing the marathon on Sunday 🩷πŸ₯°πŸ˜¬β›ΉοΈβ›ΉοΈπŸ₯‡

Thanks for the information your so kind

This Lunch & Learn for volunteers is next week! Attendees will receive an overview of the grieving experience, including the impact of personal and professional loss, and tips for coping with loss.

⭐Register: us02web.zoom.us/webinar/register/2217147250527/WN_53JCKhWFRMqEB0jD7bYHwg

#NVWIreland #NationalVolunteersWeek #webinar
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3 weeks ago
If you are a family carer/ limited to working 18.5 hours a week please link in with Count On Us Recruitment πŸ™ŒπŸ»

Thank you so much Fiona for giving such an educational and inspiring talk at our Conference πŸ’™πŸ§‘Image attachmentImage attachment+1Image attachment

If you are a family carer/ limited to working 18.5 hours a week please link in with Count On Us Recruitment πŸ™ŒπŸ»

Thank you so much Fiona for giving such an educational and inspiring talk at our Conference πŸ’™πŸ§‘
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3 weeks ago

Delighted to be hosting a stand Spina Bifida Hydrocephalus Ireland (SBHI) annual conference #volunteer #volunteerlouth ... See MoreSee Less

3 weeks ago
Thinking of gaining employment in 2024?

The next Get Job Ready event being held this year is coming up on May 30th in Dublin.

If you have Spina Bifida and/or Hydrocephalus and are interested in support with writing your C.V. or cover letter, learning about personal skills for the workplace and building your confidence to interview this event is for you!

As per the post, booking is essential - email whatworksforme@sbhi.ie to book

On the day:
CV Building, Interview techniques, Soft Skills.
Information on how employment can affect your Social Welfare Payment.
Mock interviews with skilled interviewers from the National Treasury Management Agency. 
Lunch will be provided. Goodie bags to assist with your job search will be included.

May 30th, 10am - 4pm
National Treasury Management Agency, Treasury Dock, North Wall Quay, Dublin 1, D01A9T8.

Travel information: The Red Line Luas stops very near to the NTMA at Spencer Dock.
The 151, G1, G2, and N4 Dublin Bus routes have stops close by the NTMA. 
The M3 Parkway Service train also stops nearby.

Thinking of gaining employment in 2024?

The next 'Get Job Ready' event being held this year is coming up on May 30th in Dublin.

If you have Spina Bifida and/or Hydrocephalus and are interested in support with writing your C.V. or cover letter, learning about personal skills for the workplace and building your confidence to interview this event is for you!

As per the post, booking is essential - email whatworksforme@sbhi.ie to book

On the day:
CV Building, Interview techniques, Soft Skills.
Information on how employment can affect your Social Welfare Payment.
Mock interviews with skilled interviewers from the National Treasury Management Agency.
Lunch will be provided. Goodie bags to assist with your job search will be included.

May 30th, 10am - 4pm
National Treasury Management Agency, Treasury Dock, North Wall Quay, Dublin 1, D01A9T8.

Travel information: The Red Line Luas stops very near to the NTMA at Spencer Dock.
The 151, G1, G2, and N4 Dublin Bus routes have stops close by the NTMA.
The M3 Parkway Service train also stops nearby.
... See MoreSee Less

4 weeks ago

1 CommentComment on Facebook

Sorry to have to tell you this, but if you have a disability in this country, you are better off not working because you loose yourself medical card and any other entitlements you had, which in turn leaves you worse off.

courses

SBHI Courses

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today