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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Our February newsletter has been sent! Some important info includes the Save The Date for this years AGM and Conference weekend! You can read the full newsletter here: https://mailchi.mp/1c066c7ad39e/sbhi-newsletter-17320701

Our February newsletter has been sent! Some important info includes the Save The Date for this year's AGM and Conference weekend! You can read the full newsletter here: mailchi.mp/1c066c7ad39e/sbhi-newsletter-17320701 ... See MoreSee Less

20 hours ago

1 CommentComment on Facebook

Ah great less 10mins from little Tj and me

Join Us for Our Next Online What Works For Me Programme Event:

Career Planning and Goal Setting

This is a free online webinar to support you in planning your career with confidence.

Date: Thursday, 13th February
Time: 10:30 AM – 11:30 AM
Location: Online (link will be sent after registration)

What to Expect:

Learn how to define your career goals.
Discover how to break goals into manageable steps.
Build confidence and take action towards your future.

To register, please email whatworksforme@sbhi.ie.

Take the first step towards your career with expert guidance and practical strategies. We look forward to seeing you there.

#EUinmyRegion 🇪🇺🇮🇪

Join Us for Our Next Online What Works For Me' Programme Event:

Career Planning and Goal Setting

This is a free online webinar to support you in planning your career with confidence.

Date: Thursday, 13th February
Time: 10:30 AM – 11:30 AM
Location: Online (link will be sent after registration)

What to Expect:

Learn how to define your career goals.
Discover how to break goals into manageable steps.
Build confidence and take action towards your future.

To register, please email whatworksforme@sbhi.ie.

Take the first step towards your career with expert guidance and practical strategies. We look forward to seeing you there.

#EUinmyRegion 🇪🇺🇮🇪
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4 days ago
The Annual SBHI Charity Golf Classic - August 15th! 

Registration for this years Golf Classic is now live! Open to all level of golfers, the SBHI Golf Classic is a great day from beginning to end. 

Upon arrival you get to set yourself up for the day with a hearty breakfast bap and cup of tea/coffee. Receive a fabulous goodie bag when you collect your scorecard and when you arrive back after spending the day playing on one of Irelands premier Golf Courses - Palmerstown House - you can avail of their incredible showering ( and sauna if you fancy!) rooms in preparation for a wonderful Gala Dinner upstairs in their gorgeous dinner room which overlooks the course. After dinner we will hold a raffle with some fantastic prizes, followed by the main event- announcing the winners and handing out their winning hampers!

So overall a jam packed, enjoyable day while helping to raise much needed funds to allow SBHI to continue supporting and empowering those in Ireland living with Spina Bifida and Hydrocephalus and their families.💙🧡

Please share this event with anyone in your family, workplace or wider circle that you feel would be interested in joining. You can register a team here: https://form.jotform.com/sbhireland/golfclassic

We also rely heavily on sponsorship in order for the event to be successful so if you know a company that would be willing to come on as an event sponsor please ask them to email Noelle at njordan@Sbhi.ie

The Annual SBHI Charity Golf Classic - August 15th!

Registration for this year's Golf Classic is now live! Open to all level of golfers, the SBHI Golf Classic is a great day from beginning to end.

Upon arrival you get to set yourself up for the day with a hearty breakfast bap and cup of tea/coffee. Receive a fabulous goodie bag when you collect your scorecard and when you arrive back after spending the day playing on one of Ireland's premier Golf Courses - Palmerstown House - you can avail of their incredible showering ( and sauna if you fancy!) rooms in preparation for a wonderful Gala Dinner upstairs in their gorgeous dinner room which overlooks the course. After dinner we will hold a raffle with some fantastic prizes, followed by the main event- announcing the winners and handing out their winning hampers!

So overall a jam packed, enjoyable day while helping to raise much needed funds to allow SBHI to continue supporting and empowering those in Ireland living with Spina Bifida and Hydrocephalus and their families.💙🧡

Please share this event with anyone in your family, workplace or wider circle that you feel would be interested in joining. You can register a team here: form.jotform.com/sbhireland/golfclassic

We also rely heavily on sponsorship in order for the event to be successful so if you know a company that would be willing to come on as an event sponsor please ask them to email Noelle at njordan@Sbhi.ie
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4 days ago
Set your alarms for 10am tomorrow and head to https://www.vhiwomensminimarathon.ie/ to join TEAM SBHI in this years Vhi Womens Mini Marathon for a discounted rate of €33! 🙌

SBHI Member, Sian, will be participating in her 20th marathon this year and we would love to have you join her, and us and make this the biggest Team SBHI to date!

All SBHI team members get a goodie bag and training tshirt 💙🧡

Set your alarms for 10am tomorrow and head to www.vhiwomensminimarathon.ie/ to join TEAM SBHI in this year's Vhi Women's Mini Marathon for a discounted rate of €33! 🙌

SBHI Member, Sian, will be participating in her 20th marathon this year and we would love to have you join her, and us and make this the biggest Team SBHI to date!

All SBHI team members get a goodie bag and training tshirt 💙🧡
... See MoreSee Less

2 weeks ago
A reminder of our upcomming Wheelchair Skills Workshop for members aged 2-18 years old on 22nd of April. 

The whole family is welcome to attend with opportunities for everyone to have a chance to work on their wheelchair skills and participate in games. 

We will provide lunch on the today in the TUS canteen. We are limited to facilitating 12 families so please register your interest with Claire at education@sbhi.ie or call 087 1364532

A reminder of our upcomming Wheelchair Skills Workshop for members aged 2-18 years old on 22nd of April.

The whole family is welcome to attend with opportunities for everyone to have a chance to work on their wheelchair skills and participate in games.

We will provide lunch on the today in the TUS canteen. We are limited to facilitating 12 families so please register your interest with Claire at education@sbhi.ie or call 087 1364532
... See MoreSee Less

2 weeks ago

1 CommentComment on Facebook

Colin Boyce

Come and join us to share the love for a very special Valentine’s Night full of entertainment, music & fun!💕

💘Maldron Hotel, Tallaght
💘8pm - Midnight
💘Saturday, 8th of February
💘Finger food, dj and raffle on the night
💘Entry fee is €10

If you need assistance with transportation, please contact your local branch.

Contact Sharon to confirm your place!
Text/Phone: 087 9799426 or Email: sreville@sbhi.ie
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2 weeks ago

1 CommentComment on Facebook

Looking forward to it

Unfortunately we do not have a sufficient number of sign ups for our second teen meet. We would love to see it go ahead - To register your interest, and for further information, please visit: https://form.jotform.com/sbhireland/teenmeetup2

Unfortunately we do not have a sufficient number of sign ups for our second teen meet. We would love to see it go ahead - To register your interest, and for further information, please visit: form.jotform.com/sbhireland/teenmeetup2We are excited to continue on the success of our first teen meet up and tell you all about meet up number 2! This second event is in conjunction with Tipperary Branch and the Cork Spina Bifida and Hydrocephalus Association.

The 2nd meet up will take place on February 22nd at Fota Wildlife Park in Cork,

To register your interest, and for further information, please visit: form.jotform.com/sbhireland/teenmeetup2
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3 weeks ago
We have one more charity space available for this years Irish Life Dublin Marathon !

Get in touch with Noelle by emailing njordan@sbhi.ie for further information - We would love to have you on TEAM SBHI!

We have one more charity space available for this year's Irish Life Dublin Marathon !

Get in touch with Noelle by emailing njordan@sbhi.ie for further information - We would love to have you on TEAM SBHI!
... See MoreSee Less

3 weeks ago

1 CommentComment on Facebook

Noelle Jordan Sbhi I emailed you for this spot on behalf of my husband🤞

courses

SBHI Courses

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

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    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today

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