info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Today is national ‘Take Your Pet To Work Day’ 🐶 so of course our SBHI doggies had to get involved! They are happily munching away on all of the fabulous treats we got from @petmania_ireland in a hamper after winning their Pet Friendly Workplace Ruby Award ❤️
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How Much is That Doggy in the Window You know The one With The Wagggggggggggggggley Tail 🫶🤣🤣🤣🤣🤣🤣🤣🤣🩵💛🩵💛🩵💛🩵💛🩵💛🩵💛🩵💛 Woof Woof
www.strava.com/athletes/112673254?utm_source=android_share&utm_medium=social&share_sig=DEWKILIZ17...
Ilie is on his 11th day of cycling from the South of Norway to the North. He has travelled an INCREDIBLE 934.7KM so far! You can track his progress via Strava on the link above and make a donation via the link below! Thank you so much Ilie 💙
www.idonate.ie/fundraiser/ilies3000kmWe”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre.
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What a fantastic and beautiful day was had yesterday when the Service Members from SBHI Open Opportunity Service were invited to a garden party at Áras an Uachtaráin hosted by President Michael D. Higgins and Sabina Higgins to celebrate Community Groups.
This event, a regular tradition at the President's residence, celebrates and recognizes individuals and groups who have made a significant contribution to their communities.
Go Raibh Míle Mhaith Agat do Gach Duine san Áras agus chuig an tUachtarán agus Sabina. Everyone was so kind, caring and welcoming, a wonderfully inclusive day!
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Aw fabulous day. Looked like fun.
Well done Leannan.i am sure you all had a lovely afternoon . Beautiful photos Leannan we are all proud for you ❤️ 👏
Great pictures. Hope you all enjoyed the day
Did you know some of our members are currently on the first ever SBHI Cruise?? ⚓️⚓️ We can’t wait to tell you all about it upon their return!
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Looking at the photos all week.A fabulous opportunity for our members. Louise and team Well done and to everyone involved. Looks like you all had a Great time.
I wish I was there with yee. Have an amazing safe time.
Fabulous photo....I hope everyone had a great time.... wonderful to have such an amazing team of people dedicated to organizing such brilliant opportunities/experiences...well-done to everyone involved in the organization behind the scenes. You guys really do fantastic work 🙏👏🥰
We”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre.
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Wishing you athe very best of luck and good weather...
Best of luck
Best of luck llie
Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day!
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A beautiful ceremony ❤️
It was great to have you there with us Helen Goodson Finglasxx
What a great idea. So many wonderful people deserve to be remembered
Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day!
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Lovely
Today the gang from the SBHI Open Opportunity Service hosted our first National SBHI Remembrance Day! It was a moving and beautiful ceremony to remember all the Members, Staff and Friends of SBHI who we have loved and lost over the years. Many happy stories and memories were shared with beautiful music from the Local Vocals and a lovely ceremony from the local Parish Priest, Father Damian. Thank you to all who came to join us on this special Day.! People who have been in the Spina Bifida /Hydrocephalus group have had people who have done the Church gate collecting and who have passed away and the members who have been always been remembered and I am very happy to see that the Spina Biffida / Hydrocephalus group are absolutely right that there should be a special Day of the dead parents and members and the family's of the dead do remember the dead every day anyway
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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