info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Our SBHI Easter Raffle is live! 🐰🐰🐥https://www.idonate.ie/raffle/SBHIEasterRaffle
Enter for a chance to win one of 2 AMAZING hampers packed with a variety of delicious chocolate and a cute Bunny Cup & Straw! We aim to raise €500 in our Easter Raffle- that is enough to cover sending one member on a three night respite break!
The draw will be held on Easter Sunday and two winners will be picked- please share with your family, friends and colleagues to help us reach our target and continue to provide services and support for those in Ireland living with Spina Bifida and/or Hydrocephalus.
You can purchase raffle tickets here: www.idonate.ie/raffle/SBHIEasterRaffle
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A reminder that Nurse Debbie from Coloplast Ireland will be hosting a clinic next week on Wednesday the 9th of April.
In person and virtual appointments are available
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Our Sports Day will take place on July 19th this year!
SBHI Sports Day is always a fun filled, busy day with tons of inclusive and accessible sports events on the day with something for all ages 🏓
July 19th @10am
Leixlip Amenities Centre
€5 per person or €15 per family
Get in touch with Sharon to register your place by emailing sreville@sbhi.ie
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Wil you put my name down
#teamsbhi is growing steady! Have you signed up yet??Registration for this year's VHI Women's Mini Marathon is now open!!
Spaces are expected to sell out much quicker than usual this year so make sure you confirm your space ASAP!
We would love to make this year's TEAM SBHI the biggest yet! Participating for SBHI means you are helping provide VITAL services and support to those in Ireland who live with Spina Bifida and/or Hydrocephalus. 💙
All TEAM SBHI receive a free SBHI running tshirt and a goodie bag on the day!
Sign up today at www.vhiwomensminimarathon.ie/ and select SPINA BIFIDA HYDROCEPHLAUS IRELAND as your charity 🧡
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Our March newsletter has arrived! If you did not receive it via email you can read all about upcoming events and the latest SBHI news here:
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Looking ahead to school transitions in 2025, if your child is starting pre-school, 1st or 2nd level education and you or the school would like more information about Spina Bifida and/or Hydrocephalus ...1 CommentComment on Facebook
How can I get a copy
Join Our Free Online Information Session: "The Benefits of Working with Recruitment Agencies"
Date: Thursday 13th March 2025
Time: 7:00 pm – 7:30 pm
Online via Microsoft Teams
Learn how recruitment agencies can simplify your job search, provide access to hidden opportunities, and offer expert guidance. Ideal for anyone looking to take the next step in their career.
Join us using the following link
events.teams.microsoft.com/event/5557a0a5-abfd-43ba-be7e-cc8fbf04a462@cf986b90-205e-4092-b924-ab3...
Don’t miss this opportunity to gain expert insights and enhance your career prospects.
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We would like to extend our deepest gratitude to The Hospital Saturday Fund for their continued support. Last Thursday we received a grant at the HSF Charity Reception which took place at the Mansion House, Dublin. This grant will play a vital role in expanding our teen respite and recreation offerings.
Thank you Hospital Saturday Fund for helping us to achieve our mission of enriching and enhancing the lives of those in Ireland who live with Spina Bifida and/or Hydrocephalus. 💙
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now