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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

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Do you live with Spina Bifida and/or Hydrocephalus? Are you passionate and committed about supporting your peers with their further education and employment goals? Then we want to hear from you.

We are looking for a part-time Peer Mentor to commence a 4 year contract from January 2025 (extension dependent on funding). 

The role of the Peer Mentor is to provide empathy, support and guidance from the perspective of someone with in-depth knowledge and awareness of the challenges faced by those with Spina Bifida and Hydrocephalus when navigating the world of further education and employment.

If you are interested in this role please email your CV to education@sbhi.ie before the 20th of December 2024

Do you live with Spina Bifida and/or Hydrocephalus? Are you passionate and committed about supporting your peers with their further education and employment goals? Then we want to hear from you.

We are looking for a part-time Peer Mentor to commence a 4 year contract from January 2025 (extension dependent on funding).

The role of the Peer Mentor is to provide empathy, support and guidance from the perspective of someone with in-depth knowledge and awareness of the challenges faced by those with Spina Bifida and Hydrocephalus when navigating the world of further education and employment.

If you are interested in this role please email your CV to education@sbhi.ie before the 20th of December 2024
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2 days ago
December 12th is National Christmas Jumper Day! We would love if you chose Spina Bifida Hydrocephalus Ireland as your chosen charity this year! 

All funds we raise go directly to helping improve the lives of those in Ireland living with Spina Bifida and/or Hydrocephalus and their families.

You can create your online fundraising page here ( Enter SBHI or Spina Bifida Hydrocephalus Ireland in the Chosen Charity box) : https://www.idonate.ie/createfundraiser.php?event_id=23885&chid=0

Then, decide what way you, or your business, would like to celebrate Christmas Jumper Day and fundraise. 

Here are some ideas:
🎄 Organise a Christmas Jumper Day for the office or team Zoom call and ask participants to donate to your Christmas Jumper Day fundraising page. 

🎄Ask your boss if they will match all donations or donate to the page of the person who wins Best Christmas Jumper (put it to a vote!)

🎄Organise a Festive Jumper Friday for your school or creche. Everyone donates to wear their Christmas jumper!

🎄Host a Christmas Jumper Brunch or Dinner with friends and ask everyone to donate the price of a coffee or drink to your fundraising page.

December 12th is National Christmas Jumper Day! We would love if you chose Spina Bifida Hydrocephalus Ireland as your chosen charity this year!

All funds we raise go directly to helping improve the lives of those in Ireland living with Spina Bifida and/or Hydrocephalus and their families.

You can create your online fundraising page here ( Enter SBHI or Spina Bifida Hydrocephalus Ireland in the 'Chosen Charity' box) : www.idonate.ie/createfundraiser.php?event_id=23885&chid=0

Then, decide what way you, or your business, would like to celebrate Christmas Jumper Day and fundraise.

Here are some ideas:
🎄 Organise a Christmas Jumper Day for the office or team Zoom call and ask participants to donate to your Christmas Jumper Day fundraising page.

🎄Ask your boss if they will match all donations or donate to the page of the person who wins 'Best Christmas Jumper' (put it to a vote!)

🎄Organise a Festive Jumper Friday for your school or creche. Everyone donates to wear their Christmas jumper!

🎄Host a Christmas Jumper Brunch or Dinner with friends and ask everyone to donate the price of a coffee or drink to your fundraising page.
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2 days ago
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1 week ago

13 CommentsComment on Facebook

All the beautiful people. Great photos.

This sbh family must have enjoyed the day, but I am wondering.Where are the youths and the young ones.I am part of this family,though am in Uganda,maximum respect

Gorgeous pictures from a great night

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If you have Spina Bifida and/or Hydrocephalus and are interested in support with writing your C.V. or cover letter, learning about personal skills for the workplace and building your confidence to interview this is for you!

Join us tomorrow and December 5th from 10am-1pm.

What to expect on the day:
✅ CV Building and cover letter writing– Learn how to craft  standout CV & cover letters that showcase your strengths.
✅ Interview Skills – Practice mock interviews and get tips to impress potential employers.
✅ Job Search Techniques – Discover effective ways to find and apply for the right job.
✅ Networking & Confidence Building – Boost your confidence and connect with others on the same journey.

Whether you’re new to the job market or looking to enhance your skills, this event will provide the tools and guidance you need to succeed.

Please email whatworksforme@sbhi.ie to register

#euinmyregion

If you have Spina Bifida and/or Hydrocephalus and are interested in support with writing your C.V. or cover letter, learning about personal skills for the workplace and building your confidence to interview this is for you!

Join us tomorrow and December 5th from 10am-1pm.

What to expect on the day:
✅ CV Building and cover letter writing– Learn how to craft standout CV & cover letters that showcase your strengths.
✅ Interview Skills – Practice mock interviews and get tips to impress potential employers.
✅ Job Search Techniques – Discover effective ways to find and apply for the right job.
✅ Networking & Confidence Building – Boost your confidence and connect with others on the same journey.

Whether you’re new to the job market or looking to enhance your skills, this event will provide the tools and guidance you need to succeed.

Please email whatworksforme@sbhi.ie to register

#euinmyregion
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1 week ago

1 CommentComment on Facebook

l like to up my CV It needs an up date

Join us on December 5th for our Finding Focus Workshop.

Focusing on building resilience and creative positive mindset, this event takes place in The Galshaus Hotel Tallaght on 5th of December from 10am-4pm.

‼️Only 4 places still available. Registration for this event closes on Tuesday 3rd of December. Email Zoe at zcole@sbhi.ie to register
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1 week ago
❗️Important - this event will now take place in the form of a webinar over two days on both Thurs Nov 28th and Thurs Dec 5th from 10am - 1pm.

Please email whatworksforme@sbhi.ie to register

❗️Important - this event will now take place in the form of a webinar over two days on both Thurs Nov 28th and Thurs Dec 5th from 10am - 1pm.

Please email whatworksforme@sbhi.ie to register*Get Job Ready Event - The Clayton Cork City Hotel*
We are hosting a free, one-day workshop to help you prepare for the job market and improve your employability skills!

Date: Thursday, 28th November 2024
Time: 10 AM - 4 PM
Location: Clayton Cork City Hotel
Lunch will be provided

What to expect on the day:
✅ CV Building and cover letter writing– Learn how to craft standout CV & cover letters that showcase your strengths.
✅ Interview Skills – Practice mock interviews and get tips to impress potential employers.
✅ Job Search Techniques – Discover effective ways to find and apply for the right job.
✅ Networking & Confidence Building – Boost your confidence and connect with others on the same journey.

Participants will receive a Goodie bag of items to help with their job search.

Spaces are limited, so make sure to register by emailing whatworksforme@sbhi.ie to secure your spot!

Whether you’re new to the job market or looking to enhance your skills, this event will provide the tools and guidance you need to succeed.
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1 week ago

Today we so sadly say farewell to cherished SBHI member Bernadette Flood. Our thoughts and prayers are with Bernadette’s family and friends and all those in our SBHI community who had the privilege of meeting her over the years 🧡 💙 ... See MoreSee Less

2 weeks ago

37 CommentsComment on Facebook

Bernadette was a beautiful kind lady with a beautiful personality, she will be so missed, may she rest in peace, Amen 🙏

May the good times be remembered and cherished forever and always Rest In Peace

Such sad news ❤️ Myself and lexi would like to send our deepest condolences and sympathy to Bernadette's family and friends at this sad and difficult time for you all sending you comforting hugs and strength and our love from myself and lexi ♥️xxxx❤️❤️❤️❤️ Rest in peace Bernadette ❤️💐

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courses

SBHI Courses

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

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    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today

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