info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Last week to apply for these roles📢
We're Hiring!!
We currently have two roles we are recruiting for.
If you, or anyone you know, would like further information and to apply please copy& paste the links below into your browser ( links are also available in our bio)
📌Transport Coordinator: spina-bifida-hydrocephalus-ireland.homerun.co/transport-coordinator/en
📌Family Liaison Officer for the Cavan, Monaghan, Louth, Meath and North County Dublin regions.: spina-bifida-hydrocephalus-ireland.homerun.co/family-liasion-officer/en
2 CommentsComment on Facebook
Has i hadn't anything personally yet!
Just wondering whe has been appointed Denikas position?
📣Our July Newsletter is here! Bringing you the latest SBHI news, events, and more!
You can view the newsletter here:
mailchi.mp/d2ba01e1902f/sbhi-newsletter-17325713
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Ilie is over half way to his target of raising €2,000 for our Day Service by cycling from the South to North of Norway!
You can support him on his incredible journey here: www.idonate.ie/fundraiser/ilies3000kmWe”d like to wish Ilie Gabuja the very best of luck as he takes on the incredible task of Cycling, alone, from South to North Norway! Ilie is doing this incredible challenge to raise funds for the SBHI Open Opportunity Service where is brother Anatolie attends every weekday. This has and continues to be a life changing service for Anatolie and his Family. Anatolie lives with Hydrocephalus and other conditions, being in the Service provides him with vital interventions, therapies, lots of friends and a huge social network who put a beautiful smile on his face each day! Best of luck Ilie from all of us! Thank You and Take Care, we are looking forward to welcoming you on your return at the Centre.
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We're Hiring!!
We currently have two roles we are recruiting for.
If you, or anyone you know, would like further information and to apply please click the links below:
📌Transport Coordinator: spina-bifida-hydrocephalus-ireland.homerun.co/transport-coordinator/en
📌Family Liaison Officer for the Cavan, Monaghan, Louth, Meath and North County Dublin regions.: spina-bifida-hydrocephalus-ireland.homerun.co/family-liasion-officer/en
0 CommentsComment on Facebook
What a fantastic Art Term the Service Members of SBHI Open Opportunity Service have had with their Art Tutor Will from DDLETB.
Service Members enjoyed each and every class with Will and the support of the staff in OOS and were very proud of their recent work, displayed her on the wall of their new Centre. The class is now finished for the summer and everyone is looking forward to the new term in September. Thanks to all involved. #ddletb
7 CommentsComment on Facebook
After a year of planning by our Respite and Recreation team alongside our Transport team, 3 SBHI staff accompanied 11 members on the first ever SBHI CRUISE this month!
What an amazing experience to be able to provide for our members 💙
The route was as follows:
• Pick up at Maldron Hotel, Newlands Cross and SBHI National Office
• Drive to Dublin Port in our three SBHI buses
• Ferry from Dublin to Holyhead
• Driving Holyhead to Southampton, stopping off for the night en route in Courtyard by Marriott in Oxfordshire
• Offloading passengers at Southampton Port and parking buses
• Getting on Cruise and setting sail for Amsterdam (4-night Cruise with P&O, including a walking tour of Amsterdam)
• The above then done in reverse to get home (stop-over on the way back was in Courtyard by Marriott, Staffordshire).
It was a great week, with plenty of laughter and fun and sunshine.
Some feedback from our members, which we think sums up the week:
''What I enjoyed about this trip was the freedom it gave us all to be away on a foreign holiday and being independent.''
''Best holiday ever with the best people ever. It was a blast!''
''It’s very rare that something exceeds one’s expectations and by God, it did.''
''Loads of memories that I’ll treasure forever.''
10 CommentsComment on Facebook
Looks amazing
Fantastic holiday enjoyed by all, best craic ever with the best people, 🎉🎉
The most amazing holiday I have ever been on Would do it again for sure
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now