info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Jigsaw will be joining us live on zoom to deliver their One Good Adult workshop on September 18th.
There will be two sessions of the same workshop one at 10 am and another at 7pm.
Please register by emailing education@sbhi.ie with your name followed by One Good Adult and your preferred time to attend.
One Good Adult This 1.5 hour workshop is for any adult who is or can be ‘One Good Adult’ in the life of a young person.
At the end of the workshop attendees will:
Understand the factors that influence youth mental health.
Recognise the importance of One Good Adults in supporting young people's mental health.
Recognise the importance of self-care for One Good Adults.
0 CommentsComment on Facebook
Thank you to the guys down in Carnew, Co.Wicklow who hosted the annual Tom Hennessy Memorial Horseshoe tournament and raised an amazing €350 for Spina Bifida Hydrocephalus Ireland.
Donations like these are used towards continuing to provide services and supports such as respite breaks, family weekends, counselling and family liaison support to individuals all over Ireland who live with Spina Bifida and/or Hydrocephalus. 💙🧡
0 CommentsComment on Facebook
We are looking for feedback from parents on managing Catheterisation in a school setting. We would really appreciate you sharing your experience if you have a child in school this year who requires catheterisation
Catheterisation support in schools for 2025/2026
form.jotform.com
Please click the link to complete this form.5 CommentsComment on Facebook
Could this not have been sent to families via emails instead of the main Facebook page for everyone to see.
Our daughter was catheterised from 1st day in junior infants. Right through to final day in secondary. I trained the SNAs. They installed a high low bed in both schools daughter self transferred with transfer board. The SNAs were Angels , just beautiful people willing to help in anyway.
A parent "training" an sna is not adequate they should have correct training from medical staff, they are not covered to change catheters if something happens the child it falls back on sna....
Jigsaw will be joining us live on zoom to deliver their One Good Adult workshop on September 18th.
There will be two sessions of the same workshop one at 10 am and another at 7pm.
Please register by emailing education@sbhi.ie with your name followed by One Good Adult and your preferred time to attend.
One Good Adult This 1.5 hour workshop is for any adult who is or can be ‘One Good Adult’ in the life of a young person.
At the end of the workshop attendees will:
Understand the factors that influence youth mental health.
Recognise the importance of One Good Adults in supporting young people’s mental health.
Recognise the importance of self-care for One Good Adults.
0 CommentsComment on Facebook
Jigsaw will be joining us live on zoom to deliver their One Good Adult workshop on September 18th.
There will be two sessions of the same workshop one at 10 am and another at 7pm.
Please register by emailing education@sbhi.ie with your name followed by One Good Adult and your preferred time to attend.
One Good Adult This 1.5 hour workshop is for any adult who is or can be ‘One Good Adult’ in the life of a young person.
At the end of the workshop attendees will:
Understand the factors that influence youth mental health.
Recognise the importance of One Good Adults in supporting young people's mental health.
Recognise the importance of self-care for One Good Adults.
0 CommentsComment on Facebook
Our Coloplast Clinics are back!
Nurse Debbie will be in SBHI Headquarters on the below dates to help you with any bowel/bladder issues anyone in our Spina Bifida Hydrocephalus community are experiencing including, but not limited to Ostomy Care / Continence Care / Wound & Skin Care / Interventional Urology
Debbie will be on site on the below dates:
Wednesday 24th September
Wednesday 28th October
Wednesday 25th November
Video or phone consultations are also available if you cannot make it up to our office. (SBHI, Old Nangor Road, Clondalkin, Dublin D22W5C1)
To book a slot at any of the above dates please contact the clinic coordinator by phoning 01 9190192 or email nurseteam@coloplast.com
0 CommentsComment on Facebook
The SBHI Golf Classic 2025 ⛳️
Thank you to all our players, sponsors and donators for helping the SBHI 2025 Golf Classic raise over €4,050!
We were blessed as always with sunny skies ☀️ And happy faces all round!
The event is always a great day out and we would love to see it continue to grow bigger and bigger!
The McCarthy's continue as winners again this year taking home the cup for the second year in a row! 🏆
1 CommentComment on Facebook
FOOOOOOOOOOOOOOUR.....
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now