info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Massive thank you to @925phoenixfm for joining us in the SBHI Open Opportunities Day Service for a live broadcast for #spinabifidahydrocephalus awareness week 🧡💙
The member’s always have a great time when Phoenix come in and they give fantastic interviews chatting about what it’s like to live with Spina Bifida and/ir Hydrocephalus and how meaningful the services SBHI provide are to them.
If you haven’t had a chance to listen yet you can do so on the @925phoenixfm website 📻
#WeMatter
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Fabulous photos x
That was the best experience I've had of hosting or co hosting a radio show 😊
It was a fantastic day and my first. Time ever to speak on radio but a great experience that I enjoyed roll on next Tuesday. 👍🏻❤️🥰
Day 3 of #spinabifidahydrocephalus Awareness week and it is a busy one!
First up a thank you to all the Creche’s, schools and workplaces that signed up to wear their pyjamas today and make a donation towards the life changing supports and services we provide 🧡
@dublinbusnews will be at our Open Opportunity Service teaching the members about getting on/off the bus and also giving them a chance to share their lived experiences with using public transport while having additional needs.
Our Peer Mentor, Mary, will be hosting ‘Mock Interviews’ all day. These give those curious about joining or returning to the workforce a chance to experience an interview environment without the pressure of it being the real thing. Email Mary to schedule an interview: maylward@sbhi.ie
FLO Sarah will be hosting an online ‘Teen Social’ at 7pm via Teams - this is a chance for those between 12-17 to socialise with peers in a safe space. Email FLOA8@sbhi.ie for meeting link.
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Massive thank you to @hollister_incorporated for hosting an education day on Intermittent Self Catheterisation and Stoma Care as part of our #spinabifidahydrocephalus Awareness Week programme 🧡💙 #WeMatter
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Great day thanks very much everyone xx
Today for day 2 of #spinabifidahydrocephalus Awareness week we have @hollister_incorporated joining us in our office for an Education Day on Intermittent Self-Catheterisation and Stoma Care!
If you are free from 11am-2pm we would love for you to join us! #StomaCare #ISC
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To begin this year’s #SpinaBifidaHydrocephalus Awareness Week we hosted a very special opening of the SBHI memorial garden and marked the first, and annual going forward, SBHI Remembrance Day 💙
Thank you to PwCIreland for all their help in making this garden possible through their One Firm Day programme and to all who attended this afternoon.
Please come visit the garden any time 🧡
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Beautiful 💜
That lovely well done to you all xx
That's absolutely beautiful. ❤️ Hugs to all our very special loved ones who have passed On to the next part of their journey. 🙏🙏
Today marks the beginning of Spina Bifida and Hydrocephalus Awareness week! #WeMatter #sbhi #spinabifida #hydrocephalus
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My little spina bifida princess grandaughter 4 months old x
Cuteness overload. She is beautiful
She is soooo cute ! 😍
📣 On 20 October, join IF’s webinar on ‘Inclusive Employment and Skills for Life’
💼 Having a job is more than earning a living. It gives us a sense of independence and a chance to participate actively in society. For persons with disabilities though, including those living with Spina bifida and Hydrocephalus (SBH), finding and keeping a job can be challenging, as barriers in accessibility, support and education often stand in the way and limit opportunities.
🤝The webinar will bring together voices from the SBH community, as well as advocates and experts working on inclusive employment policies. Together we will listen to personal stories, reflect on existing barriers and learn from examples of successful employment initiatives.
💬The sessions will also include an interactive discussion where participants will have the opportunity to share and exchange ideas and explore practical actions towards more inclusive workplaces around the world.
🗓️ 20 October 2025
🕒 8AM CDT | 3PM CEST | 9PM MYT
📍Online via Zoom
Register here 👉 bit.ly/3WIXVuZ
#WSBHD25 #WSBHD #Action4SBH #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
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Today is the last day to get a plaque created in time for the SBHI memorial garden opening on Monday - please email Noelle at njordan@sbhi.ieNext Monday - October 20th- we will be officially opening the SBHI Memorial Garden at our office in Clondalkin. Our Communications Manager, Noelle, will be creating 'In-Memory' plaques for anyone who would like one placed in the garden on the day to remember those within our Spina Bifida Hydrocephalus community that we have sadly lost.
If you are attending the opening and would like one made and placed in the garden in advance please email Noelle: njordan@sbhi.ie before this Thursday, October 16th with the following:
>Full name
>Dates (optional)
>Poem/Message/Passage with max 50 words
>Photo
The Garden will open at 12pm in SBHI’s Office (Old Nangor Road, Clondalkin D22W5C1) Monday 20th of October. After the opening, you are welcome to stay and join us for coffee and cake.
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now