info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Welcome, Minwei!🎉
Minwei is joining the SBHI Team over in our Open Opportunities Day Service as a Functional Support and Key Worker.
She is looking forward to supporting our community in discovering new talents, boosting their confidence and wellbeing through the nature, art and healthy cooking. Outside of work, she a good cook and enjoys hiking and Zumba!
We are looking forward to having you on the team, Minwei 😊
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The NDA (National Disability Authority) are conducting research on crisis situations experienced by autistic and/or disabled children and young people and their families in order to better prevent, intervene and manage these crisis situations in Ireland.
You can access the survey here:
Challenges, crisis and support needs of autistic and/or disabled children and young people
eu.surveymonkey.com
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Reminder of our upcoming Valentine's Social Night
Join us in the Maldron Hotel, Tallaght for an evening of fun, food, and music on Saturday, 7th of February at 7pm until 11pm.💙
Tickets are €15 each and can be purchased from Sharon by emailing sreville@sbhi.ie or phone 087 979 9426🧡
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Welcome, Rosemary!🎉
Rosemary is joining the SBHI Team over in our Open Opportunities Day Service as our Day Service and Member Support Officer.
She is looking forward to helping facilitate Members to achieve their goals, enjoy book clubs, story-telling, and new adventures in 2026. In her spare time, she likes walking, practising Tai Chi, Pilates, learning how to knit and baking
We are looking forward to having you on the team, Rosemary 😊
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Didn't realise there was a book club.
I didn't know there was a book either very interested 😁
Closing Date for Registration is next Wednesday, 28th JanuaryYou're invited!
To our annual Valentine's Social Night 💞
Join us in the Maldron Hotel, Tallaght for an evening of fun, food, and music on Saturday, 7th of February at 7pm until 11pm.💙
Please register with Sharon if you are interested in attending by emailing sreville@sbhi.ie or phone 087 979 9426
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A massive welcome to Julie-Ann Jones as she joins Spina Bifida Hydrocephalus Ireland as our new Family Liaison Manager!
Julie-Ann has worked in the non profit sector for the last 24 years,is extremely passionate about human rights and policy and is a Mum to 3 boys!
She can be contacted by emailing jajones@sbhi.ie or phone 087 - 261 1929
Welcome to the team Julie-Ann 💙
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
