info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Reminder about our upcoming webinar for any parents who have children considering third level education in the next year or two! 🎓Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.
Discuss your options with our Training and Education Team.
Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
#EUinmyregion
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Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.
Discuss your options with our Training and Education Team.
Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
#EUinmyregion
0 CommentsComment on Facebook
The What Works for Me team delivered SBHI's pilot, Inclusive Recruitment Workshop last month.
This has been carefully crafted and delivered by our Employment Facilitator, Karen Chadwick. Thank You to @marriotthotels International Cork for giving their Recruitment and Training team the time to do our workshop. The feedback has been fantastic, with staff learning and contributing lots on the day. We look forward to refining the workshop and working with more businesses in Ireland to support them in making their recruitment practices more inclusive, to offer more employment opportunities for those living with Spina Bifida, Hydrocephalus and other disabilities.
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
#euinmyregion
1 CommentComment on Facebook
Very hard to get a job with Hydrocephalus. I ve had it since 6 years.old then got bacterial meningitis and left with moderate intellectual disability and short stature. Short stature is the killer one for me i struggle with it every day been 4ft 7 and been petrified of my safety too
Thank you to every school, creche and workplace that took part in our ‘PJ for a Day’ fundraiser for this year’s #SpinaBifida and #Hydrocephalus awareness week 💙🧡
Final count is still being counted but so far we can confirm over €400 has been raised! This will be an incredible addition towards providing supports and services for the Spina Bifida and Hydrocephalus community in Ireland 🫶🏻
3 CommentsComment on Facebook
Congratulations on the money raised and the kids love the idea of the pj's day I'm guessing
Well done 👍
Congradulations All
As Sunday comes to an end so does this year’s Spina Bifida and Hydrocephalus Awareness Week.
The final item on our lineup is a series of webinars from our Health Development and Promotion Officer, Anlin.
You can find them at the links below:
Menopause with Spina Bifida and/or Hydrocephalus
youtu.be/7BIcQkB0BEU
Pressure Sores with Spina Bifida and/or Hydrocephalus
youtu.be/i9fmStjSjNg
Bladder Management with Spina Bifida and/or Hydrocephalus
youtu.be/tKARrvRbgwA
We hope you find these helpful 💙
Thank you all to everyone who attended events, commented, liked, shared and fundraised for this year’s Awareness Week - It’s been a great week and we hope you had fun, learned and enjoyed! A reminder to everyone in our community that #WeMatter 💙
4 CommentsComment on Facebook
Sbhi is my amazin family organisation love u all ❤️
Connie Richardson love you too Connie haven't seen you in a good while I hope your doing well 🩷🥰XXX
Love You all too moon n back aroumd the globe Again ♥︎♥︎♥︎
Some pictures coming in from this year’s Spina Bifida Hydrocephalus Ireland Halloween Party 👻🎃 #Spinabifidahydrocephalus Awareness Week
#WeMatter
6 CommentsComment on Facebook
Happy Halloween
Massive thank You to all the staff and busdrivers Espiacally My wingwoman Who allways Sees the best in me amd Loves me condisnolly With out drama I know sometimes Im not a easy Readlol but ill level up to this next chapeter moving forward ♡ Mybest Sox ♡♡♡
❓Are you a parent of a child who has Hydrocephalus?
❓Would you like to connect with parents who understand the stresses, fears & concerns?
❓Are you free this evening at 7pm?
As part of #SpinaBifidaHydrocephalus Awareness Week come join us via Teams for the first, of hopefully many, Parent Connects!
DM if you would like to join or email Noelle at njordan@sbhi.ie
#wematter
1 CommentComment on Facebook
Could I get sent a link for this please
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
