info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
‼️Cancellation
Due to low sign up we unfortunately have cancelled this week’s ‘Christmas Get-together’
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Eilís McDonald
“The Chat Pack Christmas Get-Together!’’
Spina Bifida Hydrocephalus Ireland (SBHI) is delighted to invite all members of The Chat Pack to our first ever in-person Christmas Get-Together!
Join us for a morning of connection, conversation, and celebration, and some festive food and cheer.
When: Thursday 4th December, from 10am to 1pm.
Where: Midlands Park Hotel, Portlaoise.
The Chat Pack is a fun, social group that helps members grow communication skills, share ideas, and build connections that can make everyday life, or work life, a little easier.
This will be a relaxed social event is, a great opportunity to meet in person, celebrate the year, and enjoy some fun activities in a welcoming space. Whether you’ve joined before or it’s your first time, everyone’s welcome.
To book your place, email whatworksforme@sbhi.ie or contact Karen on 087 188 9941.
This initiative is supported by Pobal and the EU Workability Programme, helping SBHI members take the next step towards personal and professional growth.
#EUinmyRegion 🇮🇪🇪🇺
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Would there be sbhi transport from Dublin for those of us who dont attend the Day Centre?
Last minute prep for this evening’s ❄️Winter Gala Ball❄️
Our annual fundraiser is for our members, by our members ❤️ Each hamper, gift bag, plan, design is created by them and it is an incredible event that they put together each year!
We looking forward to seeing you all later 🎄
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Best of luck with it and enjoy. Looking forward to all the glamorous pics !!
Cyas in a while
See you later aligator in a while crockadile 🩷🥰💙XXX
❄️SBHI OOS Gala Ball Update❄️
Registration is now closed for this year's Gala Ball which is taking place this Saturday, 22nd of November.
If you cannot attend, but would still like to support- please consider buying some tickets for the raffle which will be held on the night www.idonate.ie/raffle/SBHIGalaBall
Many luxury Gift hampers, deluxe hampers & retail vouchers up for grabs which our service users along with staff sourced and made within their day service to raise vital funds. 🥰
SBHI OOS Gala Ball Raffle for Spina Bifida Hydrocephalus Ireland on iDonate.ie
www.idonate.ie
iDonate.ie - SBHI OOS Gala Ball Raffle for Spina Bifida Hydrocephalus Ireland - iDonate Ireland online raffles for causes0 CommentsComment on Facebook
Massive well done to the @irelandfootball on their incredible win over the weekend!
We have met the team a few times during our annual respite break to @castleknockhotel and they have always been so kind and interested in hearing about the supports and services we provide to those in Ireland living with Spina Bifida and/or Hydrocephalus ❤️
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We were so grateful to visit Dundalk yesterday to receive a cheque from one of our #TeamSBHI Dublin Marathon Runners.
Paul raised an incredible €6,450 for Spina Bifida Hydrocephalus Ireland while also completing his first ever marathon! Thank you to you all - Paul, Fiona, Aoife, and Grainne - the level of commitment a marathon takes for an entire family is so high and to do it while raising funds for a charity is even more admirable 💙
We have very limited spaces for the 2026 Marathon -if you are interested in being a part of #TeamSBHI you can apply here: consoles.realbuzz.com/charity/dublin-marathon/listings/?utm_source=Irish+Life+Dublin+website&utm_...
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Reminder about our upcoming webinar for any parents who have children considering third level education in the next year or two! 🎓Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.
Discuss your options with our Training and Education Team.
Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
#EUinmyregion
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
