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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

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❗️Important❗️

All members should have received an Expression of Interest form in their Christmas Cards back in December. Closing date for the return  of this form is  5pm on Wednesday 14th January 2026.

Throughout 2026 we will be running a number of three-night respite breaks, facilitating those aged 18 and over. These breaks are for those living with Spina Bifida and/or Hydrocephalus only and all of these breaks will be in Galway.

For those aged 17 and under, we will be running two Family Weekends, where those living with Spina Bifida and/or Hydrocephalus can enjoy a break with siblings and parents/guardians. 

Due to anticipated high demand, we unfortunately cannot guarantee a place to everyone who applies. You will receive notification from us by 30th January letting you know if you have been allocated a respite break.

Closing date for receipt of form is 5pm on Wednesday 14th January 2026.

If you did not receive a form, please email Louise at lhealy@sbhi.ie ASAP ❗️

❗️Important❗️

All members should have received an Expression of Interest form in their Christmas Cards back in December. Closing date for the return of this form is 5pm on Wednesday 14th January 2026.

Throughout 2026 we will be running a number of three-night respite breaks, facilitating those aged 18 and over. These breaks are for those living with Spina Bifida and/or Hydrocephalus only and all of these breaks will be in Galway.

For those aged 17 and under, we will be running two Family Weekends, where those living with Spina Bifida and/or Hydrocephalus can enjoy a break with siblings and parents/guardians.

Due to anticipated high demand, we unfortunately cannot guarantee a place to everyone who applies. You will receive notification from us by 30th January letting you know if you have been allocated a respite break.

Closing date for receipt of form is 5pm on Wednesday 14th January 2026.

If you did not receive a form, please email Louise at lhealy@sbhi.ie ASAP ❗️
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4 days ago

21 CommentsComment on Facebook

I didnt get a Christmas card 😔

I didnt receive a christmas card/form

I didn’t receive anything either I will email thank you 🥰

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Ireland West Airport staff were delighted last week to present a cheque for a record €54,000 to the airport’s six staff-nominated charities for 2025. These charities are Connacht SBHI Branch (Spina Bifida Hydrocephalus), Dillon Quirke Foundation, Mayo Roscommon Hospice, Order of Malta (Knock Branch), The National Breast Cancer Research Institute, and Western Alzheimers. Each charity received a cheque worth €9,000. Airport employees selected them as part of the company’s Charities of the Year programme for 2025.

Over the course of the year, several events took place with Ireland West Airport employees getting involved to support the six charities. The most successful fundraiser in 2025 was the annual Portwest 5km Runway Run. It saw over 1,300 people take to the airport’s runway in September.

The other major fundraiser in November was an Online Bingo Night, which was a huge success. There was also a bumper online charity draw held in August. There was a strong public response. The three fundraisers, combined, raised almost €40,000 for the six charities.

For the first time in 2025, all funds raised from the recycling of plastic bottles deposited by customers and staff at the airport under the Re-turn scheme exceeded €5,000. This went towards the overall amount raised for the charities. Furthermore, all donations left in the charity boxes at various airport locations by passengers and customers throughout the year contributed. These donations helped reach a record amount raised for the six charities in 2025.

Speaking at the cheque presentation, Joe Gilmore, Managing Director, Ireland West Airport, said, “Our annual charity programme is a cornerstone initiative for the airport, and we’re proud to support it each year. I’m pleased to share that 2025 has been our strongest fundraising year yet. We were thrilled to present a cheque for €54,000 in support of the vital work these charities deliver—our highest total since launching the initiative eight years ago. This achievement reflects the ongoing dedication of our staff, who consistently go above and beyond to raise meaningful funds. We’re equally grateful to the many passengers who have contributed so generously while travelling through the airport. We’re confident these donations will have a real impact. They will provide valuable support for the incredible work these organisations carry out in the communities they serve.”

Every year, Ireland West Airport employees vote for their charities as part of the Charities of the Year Programme. The Charities of the year for 2026 will be announced early next year.
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6 days ago
Youre invited! 
To our annual Valentines Social Night 💞

Join us in the Maldron Hotel, Tallaght for an evening of fun, food, and music on Saturday, 7th of February at 7pm until 11pm.💙

Please register with Sharon if you are interested in attending by emailing sreville@sbhi.ie or phone 087 979 9426

You're invited!
To our annual Valentine's Social Night 💞

Join us in the Maldron Hotel, Tallaght for an evening of fun, food, and music on Saturday, 7th of February at 7pm until 11pm.💙

Please register with Sharon if you are interested in attending by emailing sreville@sbhi.ie or phone 087 979 9426
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6 days ago

1 CommentComment on Facebook

Tracy O'Neill

Happy New Year Everyone!🎉

We are back open from today so please get in touch if you need any support, services or information.

Phone: 01 457 2329
Email: info@sbhi.ie

#spinabifida #hydrocephalus

Happy New Year Everyone!🎉

We are back open from today so please get in touch if you need any support, services or information.

Phone: 01 457 2329
Email: info@sbhi.ie

#spinabifida #hydrocephalus
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1 week ago

9 CommentsComment on Facebook

Happy New Year to all! Wishing you a great year ahead 🎉

Happy new year to you all hope 2026 is good to us.

Happy new year to you all

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🎄Merry Christmas 🎄 We’re taking a break from the 20th of December until Monday the 5th of January. Wishing all our members, their families, supporters, volunteers and friends of SBHI a wonderful Christmas ❤️

🎄Merry Christmas 🎄 We’re taking a break from the 20th of December until Monday the 5th of January. Wishing all our members, their families, supporters, volunteers and friends of SBHI a wonderful Christmas ❤️ ... See MoreSee Less

4 weeks ago

16 CommentsComment on Facebook

Merry Christmas to you all

Merry Christmas and Happy New year to you all.

Merry Christmas !

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We are delighted to be selected by Íova again this year as the chosen charity for their annual winter show!

The show will take place Saturday, December 13th from 3pm-9pm in Tailors Hall, Dublin D08 X2A3 and a variety of prints will be on sale with 50% of the sales going towards helping us to continue to support and offer services to those in Ireland living with Spina Bifida and/or Hydrocephalus 🩵

We are delighted to be selected by Íova again this year as the chosen charity for their annual winter show!

The show will take place Saturday, December 13th from 3pm-9pm in Tailors Hall, Dublin D08 X2A3 and a variety of prints will be on sale with 50% of the sales going towards helping us to continue to support and offer services to those in Ireland living with Spina Bifida and/or Hydrocephalus 🩵
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1 month ago
Here are some of the very glamorous photos of our very glamorous guests at this year’s SBHI Open Opportunity Service Gala Ball.  

This was the 4th year of this exciting and much anticipated event, especially by our Members.
We would like to say a huge thank you to all who supported us to raise much needed funds for the SBHI OOS Service, a vital service for many in SBHI.

The current tally of funds raised is €15,405. Thank you to all who supported the event in anyway, big or small. It was a night full of fun, laughter and togetherness in our SBHI Community.Image attachmentImage attachment+Image attachment

Here are some of the very glamorous photos of our very glamorous guests at this year’s SBHI Open Opportunity Service Gala Ball.

This was the 4th year of this exciting and much anticipated event, especially by our Members.
We would like to say a huge thank you to all who supported us to raise much needed funds for the SBHI OOS Service, a vital service for many in SBHI.

The current tally of funds raised is €15,405. Thank you to all who supported the event in anyway, big or small. It was a night full of fun, laughter and togetherness in our SBHI Community.
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1 month ago

5 CommentsComment on Facebook

Fabulous pictures

Swit swoo! Beautiful night with the most beautiful people 😍 Fabulous night, well done to everyone involved😘

We had a great time

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Image attachmentImage attachment+Image attachment

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1 month ago

6 CommentsComment on Facebook

Great photos, great memories.

Fabulous pictures of an amazing night 💛

Well done all hope you all had a wonderful night

View more comments

Halloween Party

courses

SBHI Learning Hub

Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.


Latest Courses

Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus

course

Open Doors Initiative

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

4 minutes

course

Open Opportunity Service – Information Videos

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

3 hours 20 minutes

course

Careers Portal- for Careers, Education and much more

SBHI Staff, Services Staff,External Organization,School User Services,Family Careers

25 minutes

 

Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox

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    Videos

    Scroll through our video library for information on the conditions
    and the various services we offer

    Spina Bifida Explained

    Contact Our Fundraising Officer Today

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