info@sbhi.ie 
+353 (0)1 457 2329 
Anne Brady
Honorary Treasurer & Honorary Head of SBHI Governance and Financial AdvisorEmail abrady@sbhi.ie
We aim to enrich and enhance the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus and the lives of their families and wider circle.
Our History
In 1968, a small group of parents whose children had spina bifida and/or hydrocephalus established a voluntary organisation which would highlight awareness of these two conditions and support families, individuals and carers who were affected. Their determination and dedication resulted in the establishment of the Irish Association for spina bifida and hydrocephalus (IASBAH)
These parents were pioneers who laid the foundations for what is now a nationally recognised organisation. Their optimistic spirit encouraged them to affect real change with and for people who had the conditions, their families and carers.
In April 2008, the National Association of Spina Bifida Hydrocephalus Ireland Ltd was formed and now trades as Spina Bifida Hydrocephalus Ireland (SBHI).
Building upon the strong base of being a volunteer-led organisation for 40 years, SBHI became a registered company in 2008 and this opened the door to professionalise the association and gain access to Service Arrangements from the HSE. This means that today we have a staff consisting of a CEO, Deputy CEO, Fundraising and Communications Officer, a Family Liaison Officer Team, a Respite and Recreation Team, Admin Team, an Education and Training Team (employed under funding from Pobal), an Open Opportunity Team that manages our Resource Centre in Castleknock, Dublin 15.
Spina Bifida Hydrocephalus Ireland continues its tradition as a voluntary organisation, with an elected Board of Directors made up of voluntary members and parents in addition to Branches in some areas which are run by groups of local volunteers. The association has thousands of members nationwide consisting of those with spina bifida and/or hydrocephalus, their parents, siblings, family, friends and carers. Our members have a wealth of knowledge and experience which is invaluable to the association and its future development.
SBHI are a member of:
Members to date
Email abrady@sbhi.ie
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