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Life is for Living


We are delighted to announce the commencement of a new online learning series entitled, ‘Life is for Living'!

The programme features a variety of formal and informal learning sessions which will cover a range of topics relevant to those living with spina bifida and/or hydrocephalus and their families/carers. The programme will run from August to December 2020, with the aim of continuing the sessions in 2021. With topics ranging from personal care to general life skills, the Life is for Living programme will have something for everyone!

For information on our webinars, please contact SBHI Training and Education Manager, Katie Dunphy: [email protected]

To register or find out more about our life skills sessions, please contact SBHI Respite and Recreation Manager, Louise Healy: [email protected]

Click here to see our full list of events!


Our latest schedule


Register for an upcoming webinar


Re-watch our past webinars

Understanding Epilepsy - #Morethanseizures

This webinar was presented by Edel Curran from Epilepsy Ireland for family carers and individuals living with spina bifida and/or hydrocephalus.

This webinar includes a general overview of epilepsy covering:

  • Definitions
  • Epilepsy Facts
  • Different Seizure types
  • Treatment
  • Triggers for seizures
  • Seizure first aid

Relationship and Sexuality series

Episode 1 – Online Well-being

This webinar was presented by Catherine Flynn, SBHI Family Support Worker.

The webinar discussed digital stress, digital resilience and how to manage your online well-being.


Coloplast series

Episode 1 – Bowel Health and Irrigation Systems

As part of the Life is for Living programme, this webinar was presented by Debbie O'Callaghan, Urology/Continence Nurse Specialist, Coloplast. This webinar focuses on bowel health and its vital function.


Education Series

Episode 1 – The teaching and learning implications of spina bifida and hydrocephalus in primary school aged children

As part of the Life is for Living programme, this webinar was presented by SBHI Education and Training Manager, Katie Dunphy. The webinar focuses on the teaching and learning implications of spina bifida and/or hydrocephalus (SB/H) for primary school aged children.


About us...

Spina Bifida Hydrocephalus Ireland (SBHI) is a national organisation supporting more than 2,000 people who know spina bifida and/or hydrocephalus to be a reality in their lives. SBHI works to increase awareness about spina bifida and hydrocephalus, as well as the essential funds which ensure that our unique service is sustained.

We deliver unique services through our Family Support Workers, Respite and Recreation Team, Education and Training work, and through our Open Opportunities day service. Together, these teams ensure that everybody living with spina bifida and/or hydrocephalus receives the best support available to them as they seek to live fulfilled lives.

To make a donation, please click here.